I've been pretty down lately. My legs have been giving me so much grief that I've contemplated chopping them off a few too many times. I don't know if they are easing a bit or if I'm just getting used to this higher level of pain but I'm feeling quite good in myself. I was… Continue reading A Little Update
May 12th marks fibromyalgia awareness day so I'm going to write about what it means to me. To most people, fibromyalgia is just a strange word that probably means nothing. To myself and many other people it means "life-altering hell." Being given a name for what is happening to your body gives you peace of mind.… Continue reading Fibromyalgia Awareness Day
*Adults only* Since my new direction for this blog is honesty, let's be honest. When you think of having sex, all you can think of is the pleasure and excitement.....unless you have a chronic illness. It kind of removes a chunk of the romance when you have to pause for an inhaler or to put… Continue reading Let’s talk about sex, baby!
If, like me, you spend a lot of time alone, getting through simple tasks during the day can be difficult when you have an illness. I've got a few tips to make life that little bit easier and more bearable. (Please note: I don't have children, my partner works during the day but I have… Continue reading Making life easier
Dear loved one, By now you probably know that I suffer with fibromyalgia and that it impacts my life in such a way that I am no longer able to work or live my life like I used to. You may think that I am just lazy because I don't do simple things, yet I… Continue reading My Personal Fibro Letter
Most people who have been diagnosed with a chronic illness will have more than likely been suffering for months, if not years, with various symptoms. Some people may not yet have a diagnosis for numerous reasons. A lot of chronic illnesses; such as fibromyalgia, lupus, multiple sclerosis and Lyme disease share a wide range of… Continue reading Adjusting to Chronic Illness
I wanted to write this post because I think there is a lot of confusion and judgement regarding social media and invisible illnesses. I'm a member of many groups on Facebook which were set up for people suffering from illnesses such as fibromyalgia and ehlers-danlos syndrome. These groups are a place to vent, ask questions… Continue reading You’re not sick, I’ve seen your Facebook!
I don't mean music when I ask 'what do you listen to?' I'm wondering whether you should listen to your mind or your body? From personal experience the mind and body are definitely not working in harmony and it's exhausting and frustrating! It's often very difficult to know which one to listen to when both… Continue reading What do you listen to?
The therapy box was an idea given to me by one of my counsellors to help calm me when my anxiety, anger or stress levels are high. It's been really helpful to me so I wanted to share the idea. Basically, a therapy box is something you can get out when you feel your emotions… Continue reading My Therapy Box
I'm definitely far from the worst case of chronic illness. I consider myself a 'moderate' sufferer. I have several physical chronic illnesses which cause me pain, fatigue, migraines, gastrointestinal issues, nerve pain and much more. I also suffer with mental health issues; anxiety disorder, OCD and depression. There are so many symptoms with each illness… Continue reading Why a blog?